Help My Daughter! - Zilvia.net Forums | Nissan 240SX (Silvia) and Z (Fairlady) Car Forum

Robb · 07-17-2011, 09:15 PM

Most of you know the situation with my daughter, for those of you who don't, she's an 11 month old with a brain injury and sever quadra-spastic cerebral palsy. Recently, we have started looking into procedures that would help her a bit more and have come across one that is known for helping people with brain injuries, specifically her hypoxic event.

The treatment we are looking into is called Hyperbaric Oxygenation therapy. Basically, how it works, is that oxygen is saturated to 100% in the chamber (normal atmospheric oxygen is 21%) and pressurized. This combination of variables result in the increase and mobilization of stem cells at a rate of 800% above normal. To give you an idea of the results this has for brain injuries:

A video: ‪HYPERBARIC OXYGEN THERAPY CURES BRAIN DAMAGE‬&rlm; - YouTube
A study by pubmed: [Efficacy of hyperbaric oxygen therapy under diffe... [Zhongguo Dang Dai Er Ke Za Zhi. 2008] - PubMed result

100% of cases show improvement. 100%. Right now Langston doesn't sit, roll, laugh, eat by mouth, play with toys, or any normal baby stuff. Up until last month, she didn't even breath unassisted. Needless to say, anything that would give her even a shred of normality in her life would be wonderful and a blessing to our family.

Anyway, what we need to raise is at least $6500 for the cost of treatment. The insurance will approve the use of this treatment for diabetic wounds, STD's, and other aliments, but not brain injuries. So this is going to have to come out of pocket. So I'm reaching out to the community to try to find ways to raise money. I am currently in the process of pairing with local non profits to get a tax deductible ID number. I'm thinking of a raffle for something (iPad/electronics/car parts), a car show at a later time, and we are currently accepting donations.

What you can do
Donate or even just spread the word for now. So far, celebrities such as Dope Stars Inc., and Chris Raab (Raab Himself) have helped us by raising awareness. We have raised about an hour of treatment so far. Joey from 9k has also been gracious enough to not only spread the word, but donated $50 as well. Links:

Facebook: Hope for Langston Rose Fund - Cause - Harrisburg, PA | Facebook
Digg: Please Help Our Daughter With a Brain Injury - Digg
GiveForward (Donation page): http://www.giveforward.com/hopeforlangstonrosefund

RHD95S14 · 07-17-2011, 10:01 PM

Man I wish I could afford to help you.

The best of luck to you and yours.

iHeartTheTouge · 07-17-2011, 10:24 PM

Sorry to hear, after I cash some checks this week I'll donate what I can.

ayuaddict · 07-17-2011, 10:27 PM

Best of luck to your family.

Robb · 07-17-2011, 10:30 PM

Thanks guys, please spread the word if you can!

Robb · 07-18-2011, 10:43 AM

Just wanted to bump this up, please spread the word if you can.

Dro21 · 07-19-2011, 12:09 AM

Bump for you OP..Wish you and your Family the best of luck in raising the money!

Robb · 07-19-2011, 01:04 AM

We'll be organizing a car show in Central PA for this fall some time. I'll be sure to keep updated.

07-17-2011, 09:15 PM	#1
Robb Leaky Injector Join Date: Jul 2010 Location: Harrisburg, Pennsylvania Age: 31 Posts: 135 Trader Rating: (1) Feedback Score: 1 reviews	Help My Daughter! Most of you know the situation with my daughter, for those of you who don't, she's an 11 month old with a brain injury and sever quadra-spastic cerebral palsy. Recently, we have started looking into procedures that would help her a bit more and have come across one that is known for helping people with brain injuries, specifically her hypoxic event. The treatment we are looking into is called Hyperbaric Oxygenation therapy. Basically, how it works, is that oxygen is saturated to 100% in the chamber (normal atmospheric oxygen is 21%) and pressurized. This combination of variables result in the increase and mobilization of stem cells at a rate of 800% above normal. To give you an idea of the results this has for brain injuries: A video: ‪HYPERBARIC OXYGEN THERAPY CURES BRAIN DAMAGE‬&rlm; - YouTube A study by pubmed: [Efficacy of hyperbaric oxygen therapy under diffe... [Zhongguo Dang Dai Er Ke Za Zhi. 2008] - PubMed result 100% of cases show improvement. 100%. Right now Langston doesn't sit, roll, laugh, eat by mouth, play with toys, or any normal baby stuff. Up until last month, she didn't even breath unassisted. Needless to say, anything that would give her even a shred of normality in her life would be wonderful and a blessing to our family. Anyway, what we need to raise is at least $6500 for the cost of treatment. The insurance will approve the use of this treatment for diabetic wounds, STD's, and other aliments, but not brain injuries. So this is going to have to come out of pocket. So I'm reaching out to the community to try to find ways to raise money. I am currently in the process of pairing with local non profits to get a tax deductible ID number. I'm thinking of a raffle for something (iPad/electronics/car parts), a car show at a later time, and we are currently accepting donations. What you can do Donate or even just spread the word for now. So far, celebrities such as Dope Stars Inc., and Chris Raab (Raab Himself) have helped us by raising awareness. We have raised about an hour of treatment so far. Joey from 9k has also been gracious enough to not only spread the word, but donated $50 as well. Links: Facebook: Hope for Langston Rose Fund - Cause - Harrisburg, PA \| Facebook Digg: Please Help Our Daughter With a Brain Injury - Digg GiveForward (Donation page): http://www.giveforward.com/hopeforlangstonrosefund __________________ www.PictureMeDaily.com

07-17-2011, 10:01 PM	#2
RHD95S14 Zilvia Member Join Date: Apr 2009 Location: STL Age: 35 Posts: 169 Trader Rating: (3) Feedback Score: 3 reviews	Man I wish I could afford to help you. The best of luck to you and yours. Last edited by RHD95S14; 07-17-2011 at 10:47 PM..

07-17-2011, 10:24 PM	#3
iHeartTheTouge Zilvia Addict Join Date: Aug 2006 Location: Glen Allen, VA Age: 32 Posts: 602 Trader Rating: (6) Feedback Score: 6 reviews	Sorry to hear, after I cash some checks this week I'll donate what I can. __________________ Slide 'n Hide -'72 240z LS1 project

07-17-2011, 10:30 PM	#5
Robb Leaky Injector Join Date: Jul 2010 Location: Harrisburg, Pennsylvania Age: 31 Posts: 135 Trader Rating: (1) Feedback Score: 1 reviews	Thanks guys, please spread the word if you can! __________________ www.PictureMeDaily.com

07-18-2011, 10:43 AM	#6
Robb Leaky Injector Join Date: Jul 2010 Location: Harrisburg, Pennsylvania Age: 31 Posts: 135 Trader Rating: (1) Feedback Score: 1 reviews	Just wanted to bump this up, please spread the word if you can. __________________ www.PictureMeDaily.com

07-17-2011, 10:27 PM	#4
ayuaddict Post Whore! Join Date: Jan 2006 Location: Socal Age: 32 Posts: 4,017 Trader Rating: (9) Feedback Score: 9 reviews	Best of luck to your family.

07-19-2011, 12:09 AM	#7
Dro21 Leaky Injector Join Date: May 2010 Location: sacramento Posts: 67 Trader Rating: (0) Feedback Score: 0 reviews	Bump for you OP..Wish you and your Family the best of luck in raising the money!

07-19-2011, 01:04 AM	#8
Robb Leaky Injector Join Date: Jul 2010 Location: Harrisburg, Pennsylvania Age: 31 Posts: 135 Trader Rating: (1) Feedback Score: 1 reviews	We'll be organizing a car show in Central PA for this fall some time. I'll be sure to keep updated. __________________ www.PictureMeDaily.com

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