Robb
07-17-2011, 09:15 PM
Most of you know the situation with my daughter, for those of you who don't, she's an 11 month old with a brain injury and sever quadra-spastic cerebral palsy. Recently, we have started looking into procedures that would help her a bit more and have come across one that is known for helping people with brain injuries, specifically her hypoxic event.
The treatment we are looking into is called Hyperbaric Oxygenation therapy. Basically, how it works, is that oxygen is saturated to 100% in the chamber (normal atmospheric oxygen is 21%) and pressurized. This combination of variables result in the increase and mobilization of stem cells at a rate of 800% above normal. To give you an idea of the results this has for brain injuries:
A video: ‪HYPERBARIC OXYGEN THERAPY CURES BRAIN DAMAGE‬‏ - YouTube (http://www.youtube.com/watch?v=1xkHh1Cn9Ug)
A study by pubmed: [Efficacy of hyperbaric oxygen therapy under diffe... [Zhongguo Dang Dai Er Ke Za Zhi. 2008] - PubMed result (http://www.ncbi.nlm.nih.gov/pubmed/18433528)
100% of cases show improvement. 100%. Right now Langston doesn't sit, roll, laugh, eat by mouth, play with toys, or any normal baby stuff. Up until last month, she didn't even breath unassisted. Needless to say, anything that would give her even a shred of normality in her life would be wonderful and a blessing to our family.
Anyway, what we need to raise is at least $6500 for the cost of treatment. The insurance will approve the use of this treatment for diabetic wounds, STD's, and other aliments, but not brain injuries. So this is going to have to come out of pocket. So I'm reaching out to the community to try to find ways to raise money. I am currently in the process of pairing with local non profits to get a tax deductible ID number. I'm thinking of a raffle for something (iPad/electronics/car parts), a car show at a later time, and we are currently accepting donations.
What you can do
Donate or even just spread the word for now. So far, celebrities such as Dope Stars Inc., and Chris Raab (Raab Himself) have helped us by raising awareness. We have raised about an hour of treatment so far. Joey from 9k has also been gracious enough to not only spread the word, but donated $50 as well. Links:
Facebook: Hope for Langston Rose Fund - Cause - Harrisburg, PA | Facebook (http://www.facebook.com/HopeForLangstonRose)
Digg: Please Help Our Daughter With a Brain Injury - Digg (http://digg.com/news/offbeat/please_help_our_daughter_with_a_brain_injury)
GiveForward (Donation page): http://www.giveforward.com/hopeforlangstonrosefund
The treatment we are looking into is called Hyperbaric Oxygenation therapy. Basically, how it works, is that oxygen is saturated to 100% in the chamber (normal atmospheric oxygen is 21%) and pressurized. This combination of variables result in the increase and mobilization of stem cells at a rate of 800% above normal. To give you an idea of the results this has for brain injuries:
A video: ‪HYPERBARIC OXYGEN THERAPY CURES BRAIN DAMAGE‬‏ - YouTube (http://www.youtube.com/watch?v=1xkHh1Cn9Ug)
A study by pubmed: [Efficacy of hyperbaric oxygen therapy under diffe... [Zhongguo Dang Dai Er Ke Za Zhi. 2008] - PubMed result (http://www.ncbi.nlm.nih.gov/pubmed/18433528)
100% of cases show improvement. 100%. Right now Langston doesn't sit, roll, laugh, eat by mouth, play with toys, or any normal baby stuff. Up until last month, she didn't even breath unassisted. Needless to say, anything that would give her even a shred of normality in her life would be wonderful and a blessing to our family.
Anyway, what we need to raise is at least $6500 for the cost of treatment. The insurance will approve the use of this treatment for diabetic wounds, STD's, and other aliments, but not brain injuries. So this is going to have to come out of pocket. So I'm reaching out to the community to try to find ways to raise money. I am currently in the process of pairing with local non profits to get a tax deductible ID number. I'm thinking of a raffle for something (iPad/electronics/car parts), a car show at a later time, and we are currently accepting donations.
What you can do
Donate or even just spread the word for now. So far, celebrities such as Dope Stars Inc., and Chris Raab (Raab Himself) have helped us by raising awareness. We have raised about an hour of treatment so far. Joey from 9k has also been gracious enough to not only spread the word, but donated $50 as well. Links:
Facebook: Hope for Langston Rose Fund - Cause - Harrisburg, PA | Facebook (http://www.facebook.com/HopeForLangstonRose)
Digg: Please Help Our Daughter With a Brain Injury - Digg (http://digg.com/news/offbeat/please_help_our_daughter_with_a_brain_injury)
GiveForward (Donation page): http://www.giveforward.com/hopeforlangstonrosefund