Let me share a heartwarming story with you all - Page 3 - Zilvia.net Forums | Nissan 240SX (Silvia) and Z (Fairlady) Car Forum

boogerlovers · 12-18-2007, 08:11 PM

wow i am so sorry for your situation, i dont even know if being sorry is the correct feeling, im glad she is still with you, i have a daughter and i would do anything for her, ill give a donation before the end of the week if you are still accepting them...happy holidays, and i love your pictures, i learned really quick that you can never have too many of your baby...

KAT0 · 12-18-2007, 10:49 PM

Mellow babies are awesome. She's freakin' adorable! The smiles are priceless...

fromxtor · 12-19-2007, 07:51 PM

Thanks guys, it's tough from every aspect. For example the part of her brain that controls her body temp is damaged so sometimes(like tonight) it seems like she has a fever or is sick when in fact its just an irregularly high body temp(thank God). Going from two active duty paychecks to one is hard also, but w/ you all helping out and me about to get a second job we may make it.

KAT0 · 12-19-2007, 10:14 PM

You're a true inspiration.

240boy90 · 12-19-2007, 10:39 PM

God bless ur family .........

Fibercus · 01-01-2008, 09:50 PM

She looks so comfortable in your arms.

god bless

fromxtor · 01-10-2008, 11:11 AM

95Blue240sx · 01-10-2008, 12:51 PM

She is so CUTE! Wish your family all the best.

shmiddy · 01-10-2008, 12:56 PM

best wishes, sending money today

*holemilk00* · 01-27-2008, 09:27 AM

Those of us that live in this area should all try to get together and do some kind of fund raiser, it would be a way for those of us that are broke to still help.

fromxtor · 01-27-2008, 12:49 PM

Shane thanks for the awesome ideas, we have been thinking about a benefit concert but would need someone to either find the band or fund the location. We are thinking about inviting some local bands.

ESmorz · 01-27-2008, 01:09 PM

Quote:

Originally Posted by fromxtor

Shane thanks for the awesome ideas, we have been thinking about a benefit concert but would need someone to either find the band or fund the location. We are thinking about inviting some local bands.

If my band gets booked within the next month... All the money will go to you.

I don't know you or anything but I can only imagine, best wishes.

*wafflez66* · 03-09-2008, 07:58 PM

Good luck, I hope everything is going better now...Glad I could help...

Rnz520 · 03-09-2008, 09:18 PM

As broke as I am it would be wrong to not help. Admire you and your wife enormously for this.

Mi Beardo es Loco · 03-11-2008, 11:22 PM

There have been some really great things going on in the world with cp cures. Especially with some neuro acupuncture treatments. I'm not sure if there's fda approved but that's always an option.

She's so adorable! Have any new pics of her?

How severe did the doctors say she was or is it kind of a wait and see thing?

Here's a link to a cp center on the east coast.
www.cpabilitycenter.org

fromxtor · 04-16-2008, 11:20 AM

New pics of easter and her 1st birthday (april 13):

Nicole and I are very thankful she lived to be a year old and pray she has many more years ahead of her.

Dirty Habit · 04-16-2008, 02:13 PM

Awesome!

Baller flip flops by the way.

Mi Beardo es Loco · 04-16-2008, 02:20 PM

she looks so adorable! i'm sure she had a blast!!!

fromxtor · 04-16-2008, 03:02 PM

Thanks for looking guys, I'm going to try and upload more pics tonight.

AznDrftr. · 04-18-2008, 07:32 AM

she's adorable. sigh....glad shes doing better.

mRclARK1 · 04-21-2008, 12:57 AM

Wow, a year old already. Hope she keeps seeing nothing but improvements ahead.

I'd wear those flip flops.

charlie321 · 04-21-2008, 01:22 AM

glad to see that she is doing well! a year? thats great, i hope everything continues to be good. family members only come once, they deserve the best!

*DALAZ_68* · 04-21-2008, 07:38 PM

happy to see shes well taken care off...and u and ur wifey...much =props to u aswell...but on the real shes the trooper...god bless on the real

fromxtor · 04-25-2008, 06:43 PM

UPDATES:

GOOD NEWS:
We spoke to our case manager at our insurance company, and found out we are way under our cap for nursing care. So they are going to be upping it from 40 hours a week to 70, which means I wont have to play nurse and stay up all night friday and saturday nights. And that Nicole and I will be able to spend more time togather, and actually get to go out to eat which we have only done once since july.

A member of both Zilvia and carolinanissans is looking to have a benefit track day for Natalie, which I hope has a good turn out and helps all of us to get to know each other better.

BAD NEWS:
Natalie continues to have respiratory issues, and struggles to keep her blood oxygen saturation at a healthy level. Recent blood tests have shown her carbon dioxide level which should be around 24 is in the mid to high 30s, and even though her body has been compensating our pulmonologist had "the talk" w/ us yesterday.

Basically it's come down to whether we want to give her a trachestomy and admit her to the hospital for basically the remainder of her life, on a ventilator. Or just keep her as comfortable as possible at home and do the best we can to make sure however long she has left is w/o pain and suffering.

For those who didn't catch that, we can either make sure she lives as long as possble by medical intervention, drugs, constant blood tests x-rays etc. Or just spend as much time as we can w/ her making sure she has a comfortable happy(as much as it can be) life until she passes away.

onehundredoctane · 04-25-2008, 07:21 PM

^ I may have posted this on CN, but everytime I read this thread I think the same thought over and over.

Everyday at work when I take my round through NICU I see most of the same little faces I saw the day before, I never know each ones story, but knowing what all you've gone through makes it that more real everytime. I myself have never had a child, but I can only imagine what loving a child that's your own is like. A love like that isn't meant to be taken away as soon as there is potential for here in your case.

I love you guys, and hope and pray that this is as easy on your nerves as possible, even though it's probbly far from possible.

I just remembered that you mentioned to me on the phone a while back that you guys might be re-locating to Georgia, is that still going to happen?

2ilvia · 04-25-2008, 07:25 PM

personally i would spend as much time with her as possible, if she leaves this life, she'll be waiting for you in the next...
otherwise its just going to be painful for you and her if she lives in a hospital the rest of her life

fromxtor · 04-25-2008, 07:29 PM

Matt, 2ilvia thanks for your kind comments, we do cherish everyday we spend w/ her. And to think we weren't sure she was even going to make it her first week alive. We are very thankful to God she is still w/ us and hope she stays w/ us as long as she can hang in there.

Matt give me a call, billeting is super cheap here or you can stay in the spare room and you are welcome to come and wrench, cook out etc anytime. We will be moving to GA in late Oct early Nov.

gripology · 04-25-2008, 07:44 PM

I can't send much, but as soon as the funds are confirmed I'll send it your way. I hope it can help even a little. God bless you and your little girl.

Maxstyle · 04-25-2008, 09:26 PM

Only a bit of $, but hope it helps....

Sileighty_DRFT89 · 05-12-2008, 12:07 AM

your daughter is so adorable. you guys will be in my prayers daily. I wish you guys the best of luck, and come end of the week I'll be sending a little present your way. God bless.

12-18-2007, 08:11 PM	#61
boogerlovers Zilvia FREAK! Join Date: Jun 2007 Location: Palmdale Age: 33 Posts: 1,082 Trader Rating: (8) Feedback Score: 8 reviews	wow i am so sorry for your situation, i dont even know if being sorry is the correct feeling, im glad she is still with you, i have a daughter and i would do anything for her, ill give a donation before the end of the week if you are still accepting them...happy holidays, and i love your pictures, i learned really quick that you can never have too many of your baby... __________________

12-18-2007, 10:49 PM	#62
KAT0 Leaky Injector Join Date: Oct 2007 Location: West Hartford, CT Age: 34 Posts: 104 Trader Rating: (0) Feedback Score: 0 reviews	Mellow babies are awesome. She's freakin' adorable! The smiles are priceless... __________________ myspace.com/rafcotto *-Semper Fi-*

12-19-2007, 07:51 PM	#63
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Thanks guys, it's tough from every aspect. For example the part of her brain that controls her body temp is damaged so sometimes(like tonight) it seems like she has a fever or is sick when in fact its just an irregularly high body temp(thank God). Going from two active duty paychecks to one is hard also, but w/ you all helping out and me about to get a second job we may make it. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

12-19-2007, 10:14 PM	#64
KAT0 Leaky Injector Join Date: Oct 2007 Location: West Hartford, CT Age: 34 Posts: 104 Trader Rating: (0) Feedback Score: 0 reviews	You're a true inspiration. __________________ myspace.com/rafcotto *-Semper Fi-*

01-10-2008, 11:11 AM	#67
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	__________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

12-19-2007, 10:39 PM	#65
240boy90 BANNED Join Date: Sep 2007 Location: 213 Posts: 96 Trader Rating: (0) Feedback Score: 0 reviews	God bless ur family .........

01-01-2008, 09:50 PM	#66
Fibercus BANNED Join Date: Jul 2001 Location: Canyon Country, CA Age: 41 Posts: 714 Trader Rating: (0) Feedback Score: 0 reviews	She looks so comfortable in your arms. god bless

01-10-2008, 12:51 PM	#68
95Blue240sx Post Whore! Join Date: Jul 2002 Location: Girls pee-pee when they see me Age: 37 Posts: 4,084 Trader Rating: (0) Rides Gallery: 95Blue240sx Feedback Score: 0 reviews	She is so CUTE! Wish your family all the best. __________________ Please leave me feedback

01-10-2008, 12:56 PM	#69
shmiddy Zilvia FREAK! Join Date: Nov 2007 Location: nyc Age: 36 Posts: 1,279 Trader Rating: (2) Feedback Score: 2 reviews	best wishes, sending money today __________________ i fully de-volved

01-27-2008, 09:27 AM	#70
holemilk00 Premium Member Join Date: Oct 2006 Location: Cape Coral, FL Posts: 2,485 Trader Rating: (33) Feedback Score: 33 reviews	Those of us that live in this area should all try to get together and do some kind of fund raiser, it would be a way for those of us that are broke to still help.

01-27-2008, 12:49 PM	#71
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Shane thanks for the awesome ideas, we have been thinking about a benefit concert but would need someone to either find the band or fund the location. We are thinking about inviting some local bands. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

03-09-2008, 07:58 PM	#73
wafflez66 240 Dismantler Join Date: Jul 2005 Location: Watkins Glen, NY Posts: 886 Trader Rating: (7) Rides Gallery: wafflez66 Feedback Score: 7 reviews	Good luck, I hope everything is going better now...Glad I could help...

03-09-2008, 09:18 PM	#74
Rnz520 Zilvia Junkie Join Date: Oct 2007 Location: Culpeper Age: 32 Posts: 388 Trader Rating: (0) Feedback Score: 0 reviews	As broke as I am it would be wrong to not help. Admire you and your wife enormously for this.

03-11-2008, 11:22 PM	#75
Mi Beardo es Loco Nissanaholic! Join Date: Mar 2008 Location: A place where boob jobs ruined the best thing about being a fat chick. Posts: 1,774 Trader Rating: (0) Feedback Score: 0 reviews	There have been some really great things going on in the world with cp cures. Especially with some neuro acupuncture treatments. I'm not sure if there's fda approved but that's always an option. She's so adorable! Have any new pics of her? How severe did the doctors say she was or is it kind of a wait and see thing? Here's a link to a cp center on the east coast. www.cpabilitycenter.org

04-16-2008, 11:20 AM	#76
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	New pics of easter and her 1st birthday (april 13): Nicole and I are very thankful she lived to be a year old and pray she has many more years ahead of her. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

04-16-2008, 02:13 PM	#77
Dirty Habit Nissanaholic! Join Date: May 2007 Location: Ann Arbor, MI Posts: 2,069 Trader Rating: (3) Rides Gallery: Dirty Habit Feedback Score: 3 reviews	Awesome! Baller flip flops by the way. __________________ 1982 280zx Turbo

04-16-2008, 02:20 PM	#78
Mi Beardo es Loco Nissanaholic! Join Date: Mar 2008 Location: A place where boob jobs ruined the best thing about being a fat chick. Posts: 1,774 Trader Rating: (0) Feedback Score: 0 reviews	she looks so adorable! i'm sure she had a blast!!!

04-16-2008, 03:02 PM	#79
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Thanks for looking guys, I'm going to try and upload more pics tonight. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

04-18-2008, 07:32 AM	#80
AznDrftr. BANNED Join Date: Apr 2006 Location: 254 \| Texas. Age: 35 Posts: 2,293 Trader Rating: (3) Rides Gallery: AznDrftr. Feedback Score: 3 reviews	she's adorable. sigh....glad shes doing better.

04-21-2008, 12:57 AM	#81
mRclARK1 Post Whore! Join Date: Sep 2005 Location: Location? Posts: 4,205 Trader Rating: (0) Feedback Score: 0 reviews	Wow, a year old already. Hope she keeps seeing nothing but improvements ahead. I'd wear those flip flops. __________________

04-21-2008, 01:22 AM	#82
charlie321 Zilvia Addict Join Date: Dec 2006 Location: Long Beach, CA Age: 30 Posts: 989 Trader Rating: (4) Feedback Score: 4 reviews	glad to see that she is doing well! a year? thats great, i hope everything continues to be good. family members only come once, they deserve the best! __________________

04-21-2008, 07:38 PM	#83
DALAZ_68 not giving a fuck Join Date: Apr 2007 Location: Los angeles Age: 35 Posts: 15,080 Trader Rating: (104) Feedback Score: 104 reviews	happy to see shes well taken care off...and u and ur wifey...much =props to u aswell...but on the real shes the trooper...god bless on the real __________________ LOL 240... whats better than 1? 5 1's ...lol PSN & XBL GT : Wh0pp3r68 CLUB LEXUS : Wh0pp3r

04-25-2008, 06:43 PM	#84
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	UPDATES: GOOD NEWS: We spoke to our case manager at our insurance company, and found out we are way under our cap for nursing care. So they are going to be upping it from 40 hours a week to 70, which means I wont have to play nurse and stay up all night friday and saturday nights. And that Nicole and I will be able to spend more time togather, and actually get to go out to eat which we have only done once since july. A member of both Zilvia and carolinanissans is looking to have a benefit track day for Natalie, which I hope has a good turn out and helps all of us to get to know each other better. BAD NEWS: Natalie continues to have respiratory issues, and struggles to keep her blood oxygen saturation at a healthy level. Recent blood tests have shown her carbon dioxide level which should be around 24 is in the mid to high 30s, and even though her body has been compensating our pulmonologist had "the talk" w/ us yesterday. Basically it's come down to whether we want to give her a trachestomy and admit her to the hospital for basically the remainder of her life, on a ventilator. Or just keep her as comfortable as possible at home and do the best we can to make sure however long she has left is w/o pain and suffering. For those who didn't catch that, we can either make sure she lives as long as possble by medical intervention, drugs, constant blood tests x-rays etc. Or just spend as much time as we can w/ her making sure she has a comfortable happy(as much as it can be) life until she passes away. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor Last edited by fromxtor; 04-25-2008 at 07:30 PM..

04-25-2008, 07:21 PM	#85
onehundredoctane Post Whore! Join Date: Oct 2006 Location: Greensborough, NC Posts: 2,783 Trader Rating: (3) Feedback Score: 3 reviews	^ I may have posted this on CN, but everytime I read this thread I think the same thought over and over. Everyday at work when I take my round through NICU I see most of the same little faces I saw the day before, I never know each ones story, but knowing what all you've gone through makes it that more real everytime. I myself have never had a child, but I can only imagine what loving a child that's your own is like. A love like that isn't meant to be taken away as soon as there is potential for here in your case. I love you guys, and hope and pray that this is as easy on your nerves as possible, even though it's probbly far from possible. I just remembered that you mentioned to me on the phone a while back that you guys might be re-locating to Georgia, is that still going to happen?

04-25-2008, 07:25 PM	#86
2ilvia Zilvia Addict Join Date: Sep 2006 Location: norhio Posts: 627 Trader Rating: (4) Feedback Score: 4 reviews	personally i would spend as much time with her as possible, if she leaves this life, she'll be waiting for you in the next... otherwise its just going to be painful for you and her if she lives in a hospital the rest of her life __________________ S14- soon to be powered by 24v cummins- 450lbs tq

04-25-2008, 07:29 PM	#87
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Matt, 2ilvia thanks for your kind comments, we do cherish everyday we spend w/ her. And to think we weren't sure she was even going to make it her first week alive. We are very thankful to God she is still w/ us and hope she stays w/ us as long as she can hang in there. Matt give me a call, billeting is super cheap here or you can stay in the spare room and you are welcome to come and wrench, cook out etc anytime. We will be moving to GA in late Oct early Nov. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

04-25-2008, 07:44 PM	#88
gripology Join Date: Nov 2006 Location: Los Angeles Age: 52 Posts: 46 Trader Rating: (0) Feedback Score: 0 reviews	I can't send much, but as soon as the funds are confirmed I'll send it your way. I hope it can help even a little. God bless you and your little girl. __________________ Too retarded to figure out how to upload sig...

04-25-2008, 09:26 PM	#89
Maxstyle Zilvia FREAK! Join Date: Jul 2005 Location: Westminster (SoCal) Posts: 1,047 Trader Rating: (12) Rides Gallery: Maxstyle Feedback Score: 12 reviews	Only a bit of $, but hope it helps....

05-12-2008, 12:07 AM	#90
Sileighty_DRFT89 Zilvia Addict Join Date: Apr 2008 Location: LaVerne Age: 31 Posts: 960 Trader Rating: (4) Feedback Score: 4 reviews	your daughter is so adorable. you guys will be in my prayers daily. I wish you guys the best of luck, and come end of the week I'll be sending a little present your way. God bless.

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