Let me share a heartwarming story with you all - Page 4 - Zilvia.net Forums | Nissan 240SX (Silvia) and Z (Fairlady) Car Forum

Matt_Souren · 06-13-2008, 08:28 AM

How is she doing since this thread was started? Will she grow out of any of those problems?

god bless..

fromxtor · 06-17-2008, 06:54 AM

I'm sorry this update has been awhile coming, Natalie up till yesterday was doing pretty decent. Some of her teeth have been coming in and shes been a little fussy because of it. She now weighs 23 lbs and is 33" long, and has alot of hair.

BAD NEWS
Yesterday her blood oxygen monitor was reading kind of low for her, so we took her into the pediatrician. After a white blood cell count of 40000, they gave her a chest x-ray. Turns out her whole left lung is filled with fluid(pneumonia), and she is now only able to use her right one which was already damaged due to it collapsing shortly after birth. They wanted to admit her to the hospital right away, but with the possibility of her not pulling out of this we have decided to have her at home. She received a shot of antibiotics yesterday evening and we hope to hear good news at our 6:00 pm appointment today. Those who pray, please do so for Nicole, Natalie and myself. Thank you

Ninjabread · 06-17-2008, 07:12 AM

Again Josh, my thoughts and prayers are with your family!

scottie · 06-17-2008, 08:34 AM

I'll keep you all in my prayers as well. Please let us know what the progress is.

fromxtor · 06-20-2008, 10:42 AM

New pics to make ppl smile:

Natalie in her new bikini

Hello Kitty sun glasses at Grandma/Grandpas pool in GA

New bed

Sleeping like a champ

Daddy and baby time

Oh and btw the nasal cannula is in her mouth because, having in her nose too often makes it irritated and swollen blocking off any O2.

***S13SilviaGirl*** · 07-04-2008, 03:24 AM

Josh, she is beautiful, I hope she is doing well. Please, when you get a chance, throw up another update.

fromxtor · 08-28-2008, 09:20 PM

I am happy to announce Natalie seems to finally be getting over her pneumonia, we haven't taken another chest x-ray yet, but she seems to be doing alot better.Also w/ her new diet she was lost quite a bit of weight, and has grown alot longer. Here are some newer pics.

Also one of our fine members here Shane (holemilk), is sponsoring a dyno day at his place of business coming up in September to benefit Natalie. Shane or myself will be giving more details as they come down from his workplace.

LA_phantom_240 · 08-28-2008, 09:27 PM

Good to see she is doing better. Tough little girl, that's for sure. Best of luck!

***S13SilviaGirl*** · 08-28-2008, 11:27 PM

Wow she is getting so big!!!! I am glad that she seems to be doing better! She is def. one tuff kid!!!

fromxtor · 11-13-2008, 07:30 PM

I'm not home or else I would post new pics, Natalie is back on the hospital. We are planning on her going into surgery tomorrow to get a tracheostomy. Those who pray please think about her and my wife when you do so, I'll be fine.

pinky121388 · 11-15-2008, 06:50 PM

I will keep you guys in my prayers for sure...

fromxtor · 11-18-2008, 06:43 AM

The surgery went well, and she is healing up nicely. I will post pics as soon as we get home, and I can upload them.

SochBAT · 11-18-2008, 11:24 AM

My blessings are with you man.

My gf's mom had a child a few years back and she was diagnosed with Edwards Syndrome.

Edwards syndrome - Wikipedia, the free encyclopedia

In a nutshell, vital organs such as the heart, liver and often muscles don't develop properly, adding to a lower percent of survival.

She's still growing strong after 25 months.

Here she is posing for the camera. Funny thing is the glasses were from a build a bear her brother made for her. Sharing clothing with a bear = win!

I freaking love her.

mRclARK1 · 11-18-2008, 04:19 PM

90% of the adult males I know aren't as tough as this little girl.

Glad she's doing great.

fromxtor · 02-01-2009, 02:18 PM

Here are pictures of Natalie starting w/ Halloween, pre/post op trach surgery,after she got home, and Christmas.

Halloween:

She was a bunny, in case you can't tell

Pre-surgery BI PAP/Ventilator:

Post tracheostomy surgery

Ready to come home:

^^Konked out

fromxtor · 02-01-2009, 02:19 PM

Christmas:

She also got the kitten pictured above...Molly.

Hanging out with her friend Jack(he pretty much has the same problems she does only he's five):

While she was in the hospital we stayed in the Ronald McDonald house, in the room set aside for the man himself. This was on the wall staring at me everyday I woke up:

*fliprayzin240sx* · 02-01-2009, 05:20 PM

Damn Josh, good to hear she's doing better.

fromxtor · 02-01-2009, 09:05 PM

^^ We are too, its too bad they wouldnt clear her to goto GA. Looks like I'm stuck in NC, with Phlip and Barry.

*fliprayzin240sx* · 02-02-2009, 02:48 AM

Yah, i wouldnt take her to GA. Fuck that place during spring time. I've never had allergies till I got there, during tech school in Fort Gordon.

SochBAT · 02-02-2009, 03:11 AM

She's looking pretty peppy in those shots.

No joke, House of McDee's are amazing. They help out so much, not too many people really realize that. I'm always spreading the word, but it doesn't really stuck until you've been there.

My prayers are with you guys.

fromxtor · 02-02-2009, 06:48 AM

^^Thanks cheat, yea it beat paying $60-70 a night in a hotel for 3 weeks. Btw anyone reading this, if your in McDonalds please put something in the Ron McDon donation box. Anything will help, a penny, nickle, dime, anything.

93Vertman · 02-02-2009, 02:47 PM

As we have seen in the history of man kind, we join together and wish the best for the ones that need it most and you sir are a father to a beautiful child. Another thing man kind has learned is that with time, technology and patience any body could get rid of a disability as we have the ability to make life happen at its best. I wish you the best of luck and you have my prayers.

TheS14project · 02-02-2009, 08:27 PM

Im glad to hear that shes doing well, my thoughts and prayers will continue to be with her and your family.

*DALAZ_68* · 02-03-2009, 09:19 AM

mo matter what crap goes down in this forum im always thinking and prayin for this kiddo... i hope u and ur wifey are stayin stron and positive no matter what, she's obviously stronger than any one else we know...

ericcastro · 02-03-2009, 11:06 AM

She looks great.
Glad the surgery went well.
I remember reading this awhile ago and you being nervous about it.
I prayed for your family then and i will tonight.

BTW, is that tiger supposed to be a chair, cause its awsome!!! I need one in my size

lol

fromxtor · 02-03-2009, 12:26 PM

^^Yes it is a chair, although Natalie can't really sit in it.

fromxtor · 06-05-2009, 11:17 AM

Pictures of Nat's Adaptive stroller (a nice word for wheelchair), btw this cost about as much as a 240 with and SR swap.

turbo_dreams · 06-05-2009, 01:17 PM

So sorry to hear what happened man, Soon as i get my next check friday i'll help out as much as i can...How is she holding up so far?

fromxtor · 06-05-2009, 07:04 PM

She's doing alot better man, got some bad news from the eye Dr. Said her optic nerve was paleing, said that a saign of loss of vision. But she looks at us when we talk to her, I dunno maybe he just doesnt know how to deal with a special kid.

Sileighty_DRFT89 · 06-05-2009, 07:47 PM

she is definitely one special strong girl. I read your thread awhile back and was actually thinking of it the other day. glad to see she's doing good. you guys are definitely in my prayers. God bless

06-17-2008, 06:54 AM	#92
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	I'm sorry this update has been awhile coming, Natalie up till yesterday was doing pretty decent. Some of her teeth have been coming in and shes been a little fussy because of it. She now weighs 23 lbs and is 33" long, and has alot of hair. BAD NEWS Yesterday her blood oxygen monitor was reading kind of low for her, so we took her into the pediatrician. After a white blood cell count of 40000, they gave her a chest x-ray. Turns out her whole left lung is filled with fluid(pneumonia), and she is now only able to use her right one which was already damaged due to it collapsing shortly after birth. They wanted to admit her to the hospital right away, but with the possibility of her not pulling out of this we have decided to have her at home. She received a shot of antibiotics yesterday evening and we hope to hear good news at our 6:00 pm appointment today. Those who pray, please do so for Nicole, Natalie and myself. Thank you __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

06-17-2008, 07:12 AM	#93
Ninjabread Post Whore! Join Date: Jul 2005 Location: Ottawa, Ontario Age: 32 Posts: 3,492 Trader Rating: (2) Rides Gallery: Ninjabread Feedback Score: 2 reviews	Again Josh, my thoughts and prayers are with your family! __________________ 613DriftWerks.ca

06-20-2008, 10:42 AM	#95
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	New pics to make ppl smile: Natalie in her new bikini Hello Kitty sun glasses at Grandma/Grandpas pool in GA New bed Sleeping like a champ Daddy and baby time Oh and btw the nasal cannula is in her mouth because, having in her nose too often makes it irritated and swollen blocking off any O2. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

08-28-2008, 09:20 PM	#97
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	I am happy to announce Natalie seems to finally be getting over her pneumonia, we haven't taken another chest x-ray yet, but she seems to be doing alot better.Also w/ her new diet she was lost quite a bit of weight, and has grown alot longer. Here are some newer pics. Also one of our fine members here Shane (holemilk), is sponsoring a dyno day at his place of business coming up in September to benefit Natalie. Shane or myself will be giving more details as they come down from his workplace. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

11-13-2008, 07:30 PM	#100
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	I'm not home or else I would post new pics, Natalie is back on the hospital. We are planning on her going into surgery tomorrow to get a tracheostomy. Those who pray please think about her and my wife when you do so, I'll be fine. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

06-13-2008, 08:28 AM	#91
Matt_Souren Join Date: Nov 2006 Location: Bridgewater, New Jersey Age: 31 Posts: 17 Trader Rating: (0) Feedback Score: 0 reviews	How is she doing since this thread was started? Will she grow out of any of those problems? god bless..

06-17-2008, 08:34 AM	#94
scottie Zilvia FREAK! Join Date: Nov 2003 Location: asluT Posts: 1,287 Trader Rating: (11) Feedback Score: 11 reviews	I'll keep you all in my prayers as well. Please let us know what the progress is.

11-15-2008, 06:50 PM	#101
pinky121388 Leaky Injector Join Date: Aug 2008 Location: Texas Posts: 137 Trader Rating: (1) Feedback Score: 1 reviews	I will keep you guys in my prayers for sure...

11-18-2008, 06:43 AM	#102
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	The surgery went well, and she is healing up nicely. I will post pics as soon as we get home, and I can upload them. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

11-18-2008, 11:24 AM	#103
SochBAT Post Whore! Join Date: Dec 2004 Location: Abilene, TX Age: 35 Posts: 6,428 Trader Rating: (9) Rides Gallery: SochBAT Feedback Score: 9 reviews	My blessings are with you man. My gf's mom had a child a few years back and she was diagnosed with Edwards Syndrome. Edwards syndrome - Wikipedia, the free encyclopedia In a nutshell, vital organs such as the heart, liver and often muscles don't develop properly, adding to a lower percent of survival. She's still growing strong after 25 months. Here she is posing for the camera. Funny thing is the glasses were from a build a bear her brother made for her. Sharing clothing with a bear = win! I freaking love her.

11-18-2008, 04:19 PM	#104
mRclARK1 Post Whore! Join Date: Sep 2005 Location: Location? Posts: 4,205 Trader Rating: (0) Feedback Score: 0 reviews	90% of the adult males I know aren't as tough as this little girl. Glad she's doing great. __________________

02-01-2009, 02:18 PM	#105
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Here are pictures of Natalie starting w/ Halloween, pre/post op trach surgery,after she got home, and Christmas. Halloween: She was a bunny, in case you can't tell Pre-surgery BI PAP/Ventilator: Post tracheostomy surgery Ready to come home: ^^Konked out __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

02-01-2009, 02:19 PM	#106
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Christmas: She also got the kitten pictured above...Molly. Hanging out with her friend Jack(he pretty much has the same problems she does only he's five): While she was in the hospital we stayed in the Ronald McDonald house, in the room set aside for the man himself. This was on the wall staring at me everyday I woke up: __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

02-01-2009, 05:20 PM	#107
fliprayzin240sx Man w/ CTSV & a Car Seat Join Date: Aug 2002 Location: Tampa Posts: 17,998 Trader Rating: (19) Rides Gallery: fliprayzin240sx Feedback Score: 19 reviews	Damn Josh, good to hear she's doing better. __________________ If you think Zilvia has too many assholes... CLICK HERE!!!

02-01-2009, 09:05 PM	#108
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	^^ We are too, its too bad they wouldnt clear her to goto GA. Looks like I'm stuck in NC, with Phlip and Barry. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

02-02-2009, 02:48 AM	#109
fliprayzin240sx Man w/ CTSV & a Car Seat Join Date: Aug 2002 Location: Tampa Posts: 17,998 Trader Rating: (19) Rides Gallery: fliprayzin240sx Feedback Score: 19 reviews	Yah, i wouldnt take her to GA. Fuck that place during spring time. I've never had allergies till I got there, during tech school in Fort Gordon. __________________ If you think Zilvia has too many assholes... CLICK HERE!!!

02-02-2009, 03:11 AM	#110
SochBAT Post Whore! Join Date: Dec 2004 Location: Abilene, TX Age: 35 Posts: 6,428 Trader Rating: (9) Rides Gallery: SochBAT Feedback Score: 9 reviews	She's looking pretty peppy in those shots. No joke, House of McDee's are amazing. They help out so much, not too many people really realize that. I'm always spreading the word, but it doesn't really stuck until you've been there. My prayers are with you guys.

02-02-2009, 06:48 AM	#111
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	^^Thanks cheat, yea it beat paying $60-70 a night in a hotel for 3 weeks. Btw anyone reading this, if your in McDonalds please put something in the Ron McDon donation box. Anything will help, a penny, nickle, dime, anything. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

02-02-2009, 02:47 PM	#112
93Vertman Join Date: Feb 2009 Location: ca Posts: 10 Trader Rating: (0) Feedback Score: 0 reviews	As we have seen in the history of man kind, we join together and wish the best for the ones that need it most and you sir are a father to a beautiful child. Another thing man kind has learned is that with time, technology and patience any body could get rid of a disability as we have the ability to make life happen at its best. I wish you the best of luck and you have my prayers.

02-02-2009, 08:27 PM	#113
TheS14project Zilvia Junkie Join Date: Jan 2006 Location: Indiana Posts: 355 Trader Rating: (5) Feedback Score: 5 reviews	Im glad to hear that shes doing well, my thoughts and prayers will continue to be with her and your family. __________________

02-03-2009, 09:19 AM	#114
DALAZ_68 not giving a fuck Join Date: Apr 2007 Location: Los angeles Age: 35 Posts: 15,080 Trader Rating: (104) Feedback Score: 104 reviews	mo matter what crap goes down in this forum im always thinking and prayin for this kiddo... i hope u and ur wifey are stayin stron and positive no matter what, she's obviously stronger than any one else we know... __________________ LOL 240... whats better than 1? 5 1's ...lol PSN & XBL GT : Wh0pp3r68 CLUB LEXUS : Wh0pp3r

02-03-2009, 12:26 PM	#116
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	^^Yes it is a chair, although Natalie can't really sit in it. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

06-05-2009, 11:17 AM	#117
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	Pictures of Nat's Adaptive stroller (a nice word for wheelchair), btw this cost about as much as a 240 with and SR swap. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

06-05-2009, 01:17 PM	#118
turbo_dreams Zilvia FREAK! Join Date: Nov 2006 Location: queens, n.y Age: 30 Posts: 1,333 Trader Rating: (9) Feedback Score: 9 reviews	So sorry to hear what happened man, Soon as i get my next check friday i'll help out as much as i can...How is she holding up so far? __________________ www.tm-spl.com Kouki's & some apple juice.

06-05-2009, 07:04 PM	#119
fromxtor Post Whore! Join Date: Aug 2005 Location: NC Age: 40 Posts: 3,012 Trader Rating: (23) Feedback Score: 23 reviews	She's doing alot better man, got some bad news from the eye Dr. Said her optic nerve was paleing, said that a saign of loss of vision. But she looks at us when we talk to her, I dunno maybe he just doesnt know how to deal with a special kid. __________________ Seller feedback>>http://www.zilvia.net/f/showthread.p...light=fromxtor

06-05-2009, 07:47 PM	#120
Sileighty_DRFT89 Zilvia Addict Join Date: Apr 2008 Location: LaVerne Age: 31 Posts: 960 Trader Rating: (4) Feedback Score: 4 reviews	she is definitely one special strong girl. I read your thread awhile back and was actually thinking of it the other day. glad to see she's doing good. you guys are definitely in my prayers. God bless __________________ 11:11 333

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