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Old 06-13-2008, 08:28 AM   #91
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How is she doing since this thread was started? Will she grow out of any of those problems?

god bless..
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Old 06-17-2008, 06:54 AM   #92
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I'm sorry this update has been awhile coming, Natalie up till yesterday was doing pretty decent. Some of her teeth have been coming in and shes been a little fussy because of it. She now weighs 23 lbs and is 33" long, and has alot of hair.

BAD NEWS

Yesterday her blood oxygen monitor was reading kind of low for her, so we took her into the pediatrician. After a white blood cell count of 40000, they gave her a chest x-ray. Turns out her whole left lung is filled with fluid(pneumonia), and she is now only able to use her right one which was already damaged due to it collapsing shortly after birth. They wanted to admit her to the hospital right away, but with the possibility of her not pulling out of this we have decided to have her at home. She received a shot of antibiotics yesterday evening and we hope to hear good news at our 6:00 pm appointment today. Those who pray, please do so for Nicole, Natalie and myself. Thank you
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Old 06-17-2008, 07:12 AM   #93
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Again Josh, my thoughts and prayers are with your family!
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Old 06-17-2008, 08:34 AM   #94
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I'll keep you all in my prayers as well. Please let us know what the progress is.
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Old 06-20-2008, 10:42 AM   #95
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New pics to make ppl smile:


Natalie in her new bikini

Hello Kitty sun glasses at Grandma/Grandpas pool in GA

New bed


Sleeping like a champ

Daddy and baby time

Oh and btw the nasal cannula is in her mouth because, having in her nose too often makes it irritated and swollen blocking off any O2.
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Old 07-04-2008, 03:24 AM   #96
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Josh, she is beautiful, I hope she is doing well. Please, when you get a chance, throw up another update.
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Old 08-28-2008, 09:20 PM   #97
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I am happy to announce Natalie seems to finally be getting over her pneumonia, we haven't taken another chest x-ray yet, but she seems to be doing alot better.Also w/ her new diet she was lost quite a bit of weight, and has grown alot longer. Here are some newer pics.




















Also one of our fine members here Shane (holemilk), is sponsoring a dyno day at his place of business coming up in September to benefit Natalie. Shane or myself will be giving more details as they come down from his workplace.
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Old 08-28-2008, 09:27 PM   #98
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Good to see she is doing better. Tough little girl, that's for sure. Best of luck!
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Old 08-28-2008, 11:27 PM   #99
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Wow she is getting so big!!!! I am glad that she seems to be doing better! She is def. one tuff kid!!!
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Old 11-13-2008, 07:30 PM   #100
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I'm not home or else I would post new pics, Natalie is back on the hospital. We are planning on her going into surgery tomorrow to get a tracheostomy. Those who pray please think about her and my wife when you do so, I'll be fine.
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Old 11-15-2008, 06:50 PM   #101
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I will keep you guys in my prayers for sure...
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Old 11-18-2008, 06:43 AM   #102
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The surgery went well, and she is healing up nicely. I will post pics as soon as we get home, and I can upload them.
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Old 11-18-2008, 11:24 AM   #103
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My blessings are with you man.

My gf's mom had a child a few years back and she was diagnosed with Edwards Syndrome.

Edwards syndrome - Wikipedia, the free encyclopedia

In a nutshell, vital organs such as the heart, liver and often muscles don't develop properly, adding to a lower percent of survival.

She's still growing strong after 25 months.

Here she is posing for the camera. Funny thing is the glasses were from a build a bear her brother made for her. Sharing clothing with a bear = win!



I freaking love her.
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Old 11-18-2008, 04:19 PM   #104
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90% of the adult males I know aren't as tough as this little girl.

Glad she's doing great.
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Old 02-01-2009, 02:18 PM   #105
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Here are pictures of Natalie starting w/ Halloween, pre/post op trach surgery,after she got home, and Christmas.

Halloween:





She was a bunny, in case you can't tell

Pre-surgery BI PAP/Ventilator:











Post tracheostomy surgery



















Ready to come home:






^^Konked out
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Old 02-01-2009, 02:19 PM   #106
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Christmas:

















She also got the kitten pictured above...Molly.

Hanging out with her friend Jack(he pretty much has the same problems she does only he's five):


While she was in the hospital we stayed in the Ronald McDonald house, in the room set aside for the man himself. This was on the wall staring at me everyday I woke up:
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Old 02-01-2009, 05:20 PM   #107
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Damn Josh, good to hear she's doing better.
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Old 02-01-2009, 09:05 PM   #108
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^^ We are too, its too bad they wouldnt clear her to goto GA. Looks like I'm stuck in NC, with Phlip and Barry.
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Old 02-02-2009, 02:48 AM   #109
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Yah, i wouldnt take her to GA. Fuck that place during spring time. I've never had allergies till I got there, during tech school in Fort Gordon.
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Old 02-02-2009, 03:11 AM   #110
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She's looking pretty peppy in those shots.

No joke, House of McDee's are amazing. They help out so much, not too many people really realize that. I'm always spreading the word, but it doesn't really stuck until you've been there.

My prayers are with you guys.
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Old 02-02-2009, 06:48 AM   #111
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^^Thanks cheat, yea it beat paying $60-70 a night in a hotel for 3 weeks. Btw anyone reading this, if your in McDonalds please put something in the Ron McDon donation box. Anything will help, a penny, nickle, dime, anything.
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Old 02-02-2009, 02:47 PM   #112
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As we have seen in the history of man kind, we join together and wish the best for the ones that need it most and you sir are a father to a beautiful child. Another thing man kind has learned is that with time, technology and patience any body could get rid of a disability as we have the ability to make life happen at its best. I wish you the best of luck and you have my prayers.
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Old 02-02-2009, 08:27 PM   #113
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Im glad to hear that shes doing well, my thoughts and prayers will continue to be with her and your family.
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Old 02-03-2009, 09:19 AM   #114
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mo matter what crap goes down in this forum im always thinking and prayin for this kiddo... i hope u and ur wifey are stayin stron and positive no matter what, she's obviously stronger than any one else we know...
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Old 02-03-2009, 11:06 AM   #115
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She looks great.
Glad the surgery went well.
I remember reading this awhile ago and you being nervous about it.
I prayed for your family then and i will tonight.

BTW, is that tiger supposed to be a chair, cause its awsome!!! I need one in my size lol
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Old 02-03-2009, 12:26 PM   #116
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^^Yes it is a chair, although Natalie can't really sit in it.
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Old 06-05-2009, 11:17 AM   #117
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Pictures of Nat's Adaptive stroller (a nice word for wheelchair), btw this cost about as much as a 240 with and SR swap.




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Old 06-05-2009, 01:17 PM   #118
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So sorry to hear what happened man, Soon as i get my next check friday i'll help out as much as i can...How is she holding up so far?
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Old 06-05-2009, 07:04 PM   #119
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She's doing alot better man, got some bad news from the eye Dr. Said her optic nerve was paleing, said that a saign of loss of vision. But she looks at us when we talk to her, I dunno maybe he just doesnt know how to deal with a special kid.
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Old 06-05-2009, 07:47 PM   #120
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she is definitely one special strong girl. I read your thread awhile back and was actually thinking of it the other day. glad to see she's doing good. you guys are definitely in my prayers. God bless
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