Let me share a heartwarming story with you all [Archive] - Zilvia.net Forums | Nissan 240SX (Silvia) and Z (Fairlady) Car Forum

S13SilviaGirl

11-09-2007, 02:34 PM

This is the story of baby Natalie. A beautiful little girl, born to none other than our very own fromxtor, also known as Josh, and his beautiful wife, Nicole. Little Natalie was born on April 13th, at 4:17am, weighing 7lbs 4oz. and was 19 3/4" long.

From the moment she was born, little Natalie was rushed into the NICU in critical condition. After a lot of consulting and talking with the Neurologist, they learned that precious little Natalie had severe brain damage to the hypothalamus.

Baby Natalie just born:
http://i3.photobucket.com/albums/y81/fromxtor/100_0153.jpg

Daddy's Little Girl
http://i3.photobucket.com/albums/y81/fromxtor/100_0189.jpg

Mommy's Little Angel
http://i3.photobucket.com/albums/y81/fromxtor/100_0264.jpg

Little Natalie has had to have surgery to insert a G-tube @ PITT.

http://www.rch.org.au/emplibrary/clinicalguide/Gastrostomy_MIC-Key.jpg

Baby Natalie Going into surgery:
http://i3.photobucket.com/albums/y81/fromxtor/100_0395.jpg

This little girl and her family have had a very trying time, and now, this little girl can't even eat on her own. The formula she was on was $135 per box of 4, 14oz cans! Now, little baby Natalie is being fed through a stomach tube and has since been diagnosed with more illness..Cerebral Palsy.

The essential run down of Nat's illnesses:

http://en.wikipedia.org/wiki/Cerebral_palsy
http://www.emedicine.com/ped/topic149.htm
http://www.incrediblehorizons.com/ba...20function.htm
^^This is the part of her brain that is damaged, it controls:
pituitary gland regulation
blood pressure regulation
hunger and salt cravings
feeding reflexes
thirst
body temperature regulation
hydration
heart rate
bladder function
water preservation
hormonal/neurotransmitter regulation
ovarian function
testicular function
mood & behavioral functions
wakefulness
metabolism
sleep cycles
energy levels

Miss Nat on a 24 hour a day EEG that is sitting under her little cap:
http://i3.photobucket.com/albums/y81/fromxtor/100_0720.jpg

Nat as Princess Fiona:
http://i3.photobucket.com/albums/y81/fromxtor/100_0883.jpg

Now, I know a lot of you are wondering WHY this thread is here. Why is this in the Chat section? Plain and simple, it is zilvia family. We are not asking that you contribute in any way, this is being done because Zilvia would like to see that this little girl gets a little head start in life. Nicole was active duty and was forced to separate early to care for baby Natalie. With the holidays coming up, they are pretty tight for cash with all of the hospital bills, and specialists needed to keep this little girl as healthy as she can be.

With that said, YES, there are hundreds of babies out there that are sick. This baby is here, and a part of our family and community. Someone that we all have dealt with at some point in our ventures through Zilvia. That is why we are choosing to try to help raise funds for this particular little angel.

If you would like to help baby Natalie and her family have a little easier time this Christmas, whether you believe in it or not, please send a little something to the family via paypal :[email protected]

This is strictly voluntary, but would be a great gesture, not to a fellow man, but to a little baby girl that would love to have a great holiday season with her family.

Thanks for reading.

DrtyRat

11-09-2007, 02:38 PM

I'm sending money right now! May the Lord continue to be with you and your wife, Josh.

k's_silvia2.0

11-09-2007, 02:41 PM

Wow im glad to hear that shes doing ok and sorry for what Josh and his family have been put through.I could only imagine the hardship of this whole ordeal.
Im sure thats all forgotten when you see that precious little smile:).
I will send something to help you guys out.So till then just look foward to whats to come.All the best wishes.
-Luis

LimitedEdition

11-09-2007, 02:42 PM

^~~Who's Jeff?

I am down. Wishing your family the best Josh.

VROOOM

11-09-2007, 02:42 PM

my mom works at Mattel im sure i could find some infant toys to send.

ps. i promise they wont be bad chinese ones

Edgar

11-09-2007, 02:43 PM

I will be sending money as soon as I get paid.

Man, god bless that child and her family and Josh!
Everyone help a fellow Zilvian and little baby to have a great Christmas. I'm calling Santa right now, Rudolph has me on hold.

k's_silvia2.0

11-09-2007, 02:54 PM

^~~Who's Jeff?

I am down. Wishing your family the best Josh.

I was looking @ this crazy looking dude walk by and I F'ed up.:keke:

I fixed it though.

CoasTek240

11-09-2007, 02:55 PM

wow, i just got done paying my bills and saw i had a little spending money to go out tonight and maybe buy a new test pipe for my car. Looks like Ill be buying the test pipe and donating my bar tab to Josh, Nicole and lil baby Natalie. God bless your family, Josh. I will have you in my prayers.

ps. More pictures of Baby Natalie, shes adoreable

Sidewayzzz

11-09-2007, 02:59 PM

S13SilviaGirl

11-09-2007, 03:06 PM

Such a sad story, as soon as I have the ability to use paypal again, I am sending some money that way. I hope that she has a great holiday season, some of us don't really know what we have until you read something like this. My heart goes out to the family, and anyone else who has a sibling or knows someone that suffers like this.

If you want to donate, but can't use paypal, please PM fromxtor (http://www.zilvia.net/f/member.php?u=38187) and see if he has a post office box or a mailing address.

I am so happy that you all are contributing to baby Natalie. Thank you all!!!! It truly warms my heart.

And more pics of baby Nat:

http://i3.photobucket.com/albums/y81/fromxtor/100_0954.jpg

Oh snap, she knocked daddy out!
http://i3.photobucket.com/albums/y81/fromxtor/100_0949.jpg

http://i3.photobucket.com/albums/y81/fromxtor/100_0868.jpg

http://i3.photobucket.com/albums/y81/fromxtor/100_0754.jpg

http://i3.photobucket.com/albums/y81/fromxtor/100_0688.jpg

Miss Diva Thang:
http://i3.photobucket.com/albums/y81/fromxtor/100_0566.jpg

Princess Nat as Emma calls her:
http://i3.photobucket.com/albums/y81/fromxtor/100_0577.jpg

Did Nat mention that her daddy passes out hella easy when she holds him?
http://i3.photobucket.com/albums/y81/fromxtor/100_0632.jpg

ziptiedae86

11-09-2007, 03:08 PM

kdashy

11-09-2007, 03:09 PM

Princess Fiona, nice.

tacotacotaco

11-09-2007, 03:10 PM

I will be making a donation once i get off work.
Im also gonna see if theres any parts i can sell off to donate.

CursedGTR

11-09-2007, 03:11 PM

I Don't know Josh or his wife, but I am Active Duty with a daughter of my own Money is being sent right now.

fromxtor

11-09-2007, 03:11 PM

Thank you Lisa and Kevin for going out on a limb for a fellow military member. Thanks to all my fellow Zilvians for taking time to even just stop and read this, I want everyone to know that you DO NOT have to send money if you just want to send a card or something like that PM me and I'll give you my adress. I also understand that soem of you all don't make a bunch of money or are in collage and only work part time. So if you do decide to give, please do so within your means.

For those asking for more pics, I will be unleashing the fury here shortly.:D

Again thank you everyone for your kind words/thoughts and donations if you feel so inclined to do so. I hope to be able to give back in any way I can. :bigok:

Natalie was born in the local hospital here in Goldsboro, NC, and had to be flown via helicopter that same day to Greenville. I felt really bad for Nicole having to spend the night in the hospital in recovery w/o being able to visit her daughter. We then continued to visit her at PCMH daily for 3 months while she was there.

We are currently trying to get into several state/gov't programs but they aren't as easy to get into as your would think.

S13SilviaGirl

11-09-2007, 03:18 PM

Why would she want to get out of the military? Not trying to be an asshole. I know most of the staff at the NICU there on CP Lester.

Now, just a little military 411 for all of you.

If a service member's child is born in a military hospital, with a debilitating disease such as CP, the US govmt will cover the costs of LONG TERM medical care including any major operations and medicine FOR THE REST OF THE CHILD'S LIFE. What they will NOT cover is food and lodging (hence Lisa's request for donations).

Additionally, the parents now qualify for many state funded benefits and have access to places to stay like the Fisher house.

The parents still pay a lot out of pocket but the US govmt is covering much more of that cost.

With that being said, I have donated a bit I saved up for my turbo project to the aforementioned parents. I know what its like to have family issues come up while you serve (I'm ARMY btw). Money comes and goes folks, but some things are more important things than cars, especially this time of year.

--ziptiedae86

There are other costs that the military is not covering right now. The father is active duty, and Nat needed someone to care for her 24/7. I know that the military and tricare only pay for parts of it. There is a lawsuit going on right now trying to get the govt to pay as you have stated(not with this family, another). It is a hard thing, and I know you weren't trying to be an ass. Just a lot of factors in it.

I know that Josh and his family appreciate just the thought and the time you all have given to just read this thread.

upSLIDEdown

11-09-2007, 03:57 PM

Wow, she's a cutie! My thoughts and prayers are with you and your family. Families mean so much, whether it's your own personal family, or a family of sorts (such as Zilvia). Looks like you've got a beautiful new addition to yours! :bigok:

CrimsonRockett

11-09-2007, 04:06 PM

I will deff. contribute as soon as I get my little problem settled.

She's super adorable.

Makes me want to have kids at such an early age.

:bigok:

Edgar

11-09-2007, 04:17 PM

http://www.yorkie.org/images/puppy-6weeks.jpg

Every kid needs a puppy! Again! I hope everything goes for the best.

hijack3d

11-09-2007, 04:22 PM

She's so cute... my neice came out looking like an alien :-\ ...

PMed you, btw :)!

Rob's S14

11-09-2007, 04:29 PM

Just sent. Best wishes to you and the whole family.

LA_phantom_240

11-09-2007, 04:45 PM

Crap. Why do I have to be so broke?

As soon as I get paid next, I'll be glad to help.

tdub377

11-09-2007, 04:46 PM

Just sent my donation. That is a beautiful little girl there. I hope all goes well and you are in my prayers. I dont really have much money to spend right now between my cars and I just bought a house, but hey whatever I dont care. It is the time to give and this family needs help so its worth it to me.

Ninjabread

11-09-2007, 04:57 PM

Josh and Nicole, I'll be sending a gift your way once my paycheck clears.

Again, wish you guys the best of luck!

Roc

11-09-2007, 05:09 PM

Hope everything works out... I understand its a rough time God Bless Your child. Ill see if I can send a little something... hope evertyhing turns out for the best.

fromxtor

11-09-2007, 06:31 PM

Thank you very much for those of you who have sent gifts already, Nicole and I are florred at your generosity.

Also to anyone who has already sent a gift plz PM me or e-mail me your mailing address so we can at least send thank you cards. My e-mail is [email protected] obviously, and those who will be sending money plz put a mailing address on your paypal payment.

ManoNegra

11-09-2007, 06:33 PM

Wishing you the best man. I'm speechless...

ecuastyle84

11-09-2007, 06:45 PM

omg this is so sad...ill be happy to send a donation...my best wishes to you Josh/Nicole and that adorable baby. i hope all goes well and god bless.

S13SilviaGirl

11-09-2007, 07:03 PM

Once again, members of Zilvia, you are all AWESOME!!!!! :bigok:

j00ni3

11-09-2007, 07:33 PM

just sent a wee bit that may help their family... hope everything goes well and hope that in the end everyone will be happy~

xcusememisswyn

11-09-2007, 08:38 PM

Sent what I could...

Best of luck

kouki-gymkhana

11-10-2007, 07:05 AM

So sorry to hear about your child having cerebral palsy. I work with CP kids all the time at work (I'm an M.D.) and I can only imagine the challenges you and your wife will face in the coming years. PM me with your address and I'll be happy to forward a little something in the mail. Best wishes and stay strong!
-KG

spool_sample

11-10-2007, 08:18 AM

I hardly ever use PayPal, but I figure this would be as good of a reason as any.

I sent a little something along.

ROUGE180

11-10-2007, 08:56 AM

Just sent. Take care of that amazing child of yours. I wish you and yours the best. ZILVIANS UNITE!!

punxva

11-10-2007, 02:58 PM

i will be sending as much as i can when i get paid, this is a much better cause than giving change to the homeless in richmond, zilvia family's for the win

mRclARK1

11-10-2007, 05:32 PM

How did I miss this until now?

I'll muster up some money to paypal, and get it sent ASAP. :bow:

Slidin240Wayz

11-10-2007, 06:10 PM

I'll PM you for your address.

Best wishes to you and yours.

She's adorable.

Carlos

Edgar

11-11-2007, 08:12 AM

+rep for all of you guys

This is awesome for people to step up and help someone they chat with online. Now this is what Zilvia is all about. I get paid this upcoming week, ill be sending a little something as well. I am also going to be donating some to Diabetes Fundation of America or something like that in honor of my girlfriends grandmothers death, she wanted that instead of flowers that will go to waste at her grave. Great job dudes!

CAPTAINNEO

11-12-2007, 11:20 AM

money sent. not much, but hope it helps.

being a new father, stuff like this hits real close to home...

Howard92884

11-12-2007, 04:53 PM

OMG I can't believe I just now read this. I have a baby girl, and she is my life, I can't even imagine what you are going through. I would be more than happy to help, my prayers and best wishes go out to you and your family. Oh yeah and THANK YOU FOR SERVING!!

mad-ass

11-12-2007, 11:58 PM

I am just now reading this, I don't visit this section of the site that often[well, the whole site], but since I am reading this and I do have room to help with, I will do so accordingly after payday on the 15th[damn, i hate waiting for that day, oh btw, Active Duty Air Force here @ Travis AFB, CA]

I hope the whole family pulls through until she's fully recovered! my prayer will be with the family, always!

- Lee

S13SilviaGirl

11-13-2007, 04:31 AM

Once again... Zilvians kick ASS!!!! Thank you all for helping The family out!

fromxtor

11-13-2007, 12:09 PM

Thank you everyone, for all the gifts you sent. Please remember if you are sending a gift via PayPal plz remember to put a "shipping address" on the payment so we can send you a thank you in the mail.

MOAR pics!
http://i3.photobucket.com/albums/y81/fromxtor/yoo0m4x.png
http://i3.photobucket.com/albums/y81/fromxtor/100_0688.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0704.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0651.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0650.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0644.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0643.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0636.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0635.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0634.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0632.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0623.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0620.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0612.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0608.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0604.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0599.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0596.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0589.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0586.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0585.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0584.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0582.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0581.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0579.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0577.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0568.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0567.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0566.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0550.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0535.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0531.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0519.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0514.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0513.jpg

kingkilburn

11-13-2007, 12:32 PM

I know the gov can be slow about getting you your money. My mom was in the army for twenty years, served in a war zone, a disaster zone, and in Korea and she is still waiting for her money two and a half years later. Along with getting screwed every month on her CALVET home loan.

I wish you guys the best. If I had any thing to give I'd give it in a heart beat.

Vision Garage

11-13-2007, 01:49 PM

Stunna shades baby pix are awesome. Ill chime in on friday when i get paid. Best wishes from Zilvia and myself. Just on a side note, what else can we get for you? Money is always good but just in case. If imma send a present i better get a picture back with her using or wearing it! :)

fromxtor

11-13-2007, 02:08 PM

^^ I can do that, we take pics of her daily. :D She wears 9-12 months in clothes so if you se anything in pink or thats cute feel free to pick it up. :bigok:

motorsnail

11-13-2007, 03:12 PM

Sad..........Will send money next week I got a babby on the way could only imagine....God bless keep your chin up mommy and daddy she needs it.......

fromxtor

11-13-2007, 03:28 PM

Thank you^^ good luck w/ your child God belss you all.

KAT0

11-13-2007, 03:47 PM

Best wishes to the family. So very few that would keep on going knowing all that. Props to you guys for taking on something consider a burden and making it a blessing.

I'd wish you luck, but from the look of those pics, I know you'll do your absolute best.

ctm_motortrends

11-13-2007, 07:29 PM

Just paypal them Good Luck With everything. If anyone buys my momo seat all the money will go to the baby so buy it.

BRAIN_Z33

11-13-2007, 08:01 PM

Wow, This Truely Is A Touching Story, So Much That I Had To Share With My Girlfriend... Who Just Had A Baby Ourselves In June. And I Can See Where The Family Is Coming From With A New Life.... My Girlfriend And I Wish Natalie The Best In Her Life And Her Misfortunes. I Hope She Gets Better. I Have Sent Them A Little Something Via Paypal. Good Luck With Everything And Happy Holidays.

sideview_180sx

11-16-2007, 02:44 AM

you Josh. You need some sleep man. You baby girl is gonna need you much longer then right now. Power nap it if you can. Sleep deprivation/stressed sleep, is gonna comeback big later on. I co-owner 2 daycare centers and I know how ancy and stressed you get when kids aren't tip top. I will see if I can shorten up your story and print it out to be passed around my congregation. I'm not sure if funds will come about but I hope many prayers will be said. Godspeed on the care and strength of you and your family.

jfc3po

11-17-2007, 03:27 PM

wow...she looks just like her daddy! I just read this so I'll be sending something soon....what size shoes does she wear? I might go pick up some baby jordans or something for her. Let me know man....

All the best

S13SilviaGirl

11-17-2007, 07:25 PM

Josh, we demand Updated pics of the mini-you~ :D

fromxtor

12-02-2007, 04:41 PM

http://i3.photobucket.com/albums/y81/fromxtor/100_0960.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0963.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0975.jpg
^^FYI that is not one of those cheesey female body inspector T's, it's an actual
FBI T from the FBI building in NYC.

http://i3.photobucket.com/albums/y81/fromxtor/100_0976.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0977.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0979.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0992.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0989.jpg
^^ Practice X-mas photos

http://i3.photobucket.com/albums/y81/fromxtor/100_0993.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0995.jpg
^^ Natalie's first smiles, sucks she only does it when shes asleep

http://i3.photobucket.com/albums/y81/fromxtor/100_0994.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_0997.jpg

http://i3.photobucket.com/albums/y81/fromxtor/100_0999.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1000.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1001.jpg
^^ Nat on her first road trip, we went to MD to visit my parents for T-day.

Kuzumi

12-02-2007, 11:21 PM

sooooo cute :)
lol some of the pictures of the baby are "i see what you did there" pictures

drifting.8

12-03-2007, 01:15 PM

best wishes to your family i kno what its like to have sickness in the family ... ill send something when i get paid.

BBSilvia

12-03-2007, 11:33 PM

my prayers go out to you and your kid, all be sending you a PM about your mailing address and be sending something your way
and once again best wishes to you and your family

fromxtor

12-08-2007, 09:25 PM

http://i3.photobucket.com/albums/y81/fromxtor/100_1109.jpg

k's_silvia2.0

12-08-2007, 09:31 PM

Josh, we demand Updated pics of the mini-you~ :D
Seriously!!!!!
http://i3.photobucket.com/albums/y81/fromxtor/100_1109.jpg

HAPPY HOLIDAYS!!!! <Even though you cant see it.

boogerlovers

12-18-2007, 08:11 PM

wow i am so sorry for your situation, i dont even know if being sorry is the correct feeling, im glad she is still with you, i have a daughter and i would do anything for her, ill give a donation before the end of the week if you are still accepting them...happy holidays, and i love your pictures, i learned really quick that you can never have too many of your baby...:keke:

KAT0

12-18-2007, 10:49 PM

Mellow babies are awesome. She's freakin' adorable! The smiles are priceless...

fromxtor

12-19-2007, 07:51 PM

Thanks guys, it's tough from every aspect. For example the part of her brain that controls her body temp is damaged so sometimes(like tonight) it seems like she has a fever or is sick when in fact its just an irregularly high body temp(thank God). Going from two active duty paychecks to one is hard also, but w/ you all helping out and me about to get a second job we may make it. :D

KAT0

12-19-2007, 10:14 PM

You're a true inspiration.

240boy90

12-19-2007, 10:39 PM

God bless ur family .........

Fibercus

01-01-2008, 09:50 PM

She looks so comfortable in your arms.

god bless

fromxtor

01-10-2008, 11:11 AM

http://i3.photobucket.com/albums/y81/fromxtor/100_1165.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1168.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1169.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1170.jpg

95Blue240sx

01-10-2008, 12:51 PM

She is so CUTE! Wish your family all the best.

shmiddy

01-10-2008, 12:56 PM

best wishes, sending money today

holemilk00

01-27-2008, 09:27 AM

Those of us that live in this area should all try to get together and do some kind of fund raiser, it would be a way for those of us that are broke to still help.

fromxtor

01-27-2008, 12:49 PM

Shane thanks for the awesome ideas, we have been thinking about a benefit concert but would need someone to either find the band or fund the location. We are thinking about inviting some local bands.

ESmorz

01-27-2008, 01:09 PM

Shane thanks for the awesome ideas, we have been thinking about a benefit concert but would need someone to either find the band or fund the location. We are thinking about inviting some local bands.

If my band gets booked within the next month... All the money will go to you.

I don't know you or anything but I can only imagine, best wishes.

wafflez66

03-09-2008, 07:58 PM

Good luck, I hope everything is going better now...Glad I could help...

Rnz520

03-09-2008, 09:18 PM

As broke as I am it would be wrong to not help. Admire you and your wife enormously for this.

Mi Beardo es Loco

03-11-2008, 11:22 PM

There have been some really great things going on in the world with cp cures. Especially with some neuro acupuncture treatments. I'm not sure if there's fda approved but that's always an option.

She's so adorable! Have any new pics of her?

How severe did the doctors say she was or is it kind of a wait and see thing?

Here's a link to a cp center on the east coast.
www.cpabilitycenter.org

fromxtor

04-16-2008, 11:20 AM

New pics of easter and her 1st birthday (april 13):
http://i3.photobucket.com/albums/y81/fromxtor/100_1315.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1316.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1317.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1318.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1323.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1332.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1333.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1339.jpg

http://i3.photobucket.com/albums/y81/fromxtor/100_1355.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1344.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1348.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1349.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1351.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1352.jpg

Nicole and I are very thankful she lived to be a year old and pray she has many more years ahead of her.

Dirty Habit

04-16-2008, 02:13 PM

Awesome!

Baller flip flops by the way.

Mi Beardo es Loco

04-16-2008, 02:20 PM

she looks so adorable! i'm sure she had a blast!!!

fromxtor

04-16-2008, 03:02 PM

Thanks for looking guys, I'm going to try and upload more pics tonight.

AznDrftr.

04-18-2008, 07:32 AM

she's adorable. sigh....glad shes doing better.

mRclARK1

04-21-2008, 12:57 AM

Wow, a year old already. Hope she keeps seeing nothing but improvements ahead.

I'd wear those flip flops. :rawk:

charlie321

04-21-2008, 01:22 AM

glad to see that she is doing well! a year? thats great, i hope everything continues to be good. family members only come once, they deserve the best!

DALAZ_68

04-21-2008, 07:38 PM

happy to see shes well taken care off...and u and ur wifey...much =props to u aswell...but on the real shes the trooper...god bless on the real :wiggle:

fromxtor

04-25-2008, 06:43 PM

UPDATES:

GOOD NEWS:
We spoke to our case manager at our insurance company, and found out we are way under our cap for nursing care. So they are going to be upping it from 40 hours a week to 70, which means I wont have to play nurse and stay up all night friday and saturday nights. And that Nicole and I will be able to spend more time togather, and actually get to go out to eat which we have only done once since july.

A member of both Zilvia and carolinanissans is looking to have a benefit track day for Natalie, which I hope has a good turn out and helps all of us to get to know each other better.

BAD NEWS:
Natalie continues to have respiratory issues, and struggles to keep her blood oxygen saturation at a healthy level. Recent blood tests have shown her carbon dioxide level which should be around 24 is in the mid to high 30s, and even though her body has been compensating our pulmonologist had "the talk" w/ us yesterday.

Basically it's come down to whether we want to give her a trachestomy and admit her to the hospital for basically the remainder of her life, on a ventilator. Or just keep her as comfortable as possible at home and do the best we can to make sure however long she has left is w/o pain and suffering.

For those who didn't catch that, we can either make sure she lives as long as possble by medical intervention, drugs, constant blood tests x-rays etc. Or just spend as much time as we can w/ her making sure she has a comfortable happy(as much as it can be) life until she passes away.

onehundredoctane

04-25-2008, 07:21 PM

^ I may have posted this on CN, but everytime I read this thread I think the same thought over and over.

Everyday at work when I take my round through NICU I see most of the same little faces I saw the day before, I never know each ones story, but knowing what all you've gone through makes it that more real everytime. I myself have never had a child, but I can only imagine what loving a child that's your own is like. A love like that isn't meant to be taken away as soon as there is potential for here in your case.

I love you guys, and hope and pray that this is as easy on your nerves as possible, even though it's probbly far from possible.

I just remembered that you mentioned to me on the phone a while back that you guys might be re-locating to Georgia, is that still going to happen?

2ilvia

04-25-2008, 07:25 PM

personally i would spend as much time with her as possible, if she leaves this life, she'll be waiting for you in the next...
otherwise its just going to be painful for you and her if she lives in a hospital the rest of her life

fromxtor

04-25-2008, 07:29 PM

Matt, 2ilvia thanks for your kind comments, we do cherish everyday we spend w/ her. And to think we weren't sure she was even going to make it her first week alive. We are very thankful to God she is still w/ us and hope she stays w/ us as long as she can hang in there.

Matt give me a call, billeting is super cheap here or you can stay in the spare room and you are welcome to come and wrench, cook out etc anytime. We will be moving to GA in late Oct early Nov.

gripology

04-25-2008, 07:44 PM

I can't send much, but as soon as the funds are confirmed I'll send it your way. I hope it can help even a little. God bless you and your little girl.

Maxstyle

04-25-2008, 09:26 PM

Only a bit of $, but hope it helps....

Sileighty_DRFT89

05-12-2008, 12:07 AM

your daughter is so adorable. you guys will be in my prayers daily. I wish you guys the best of luck, and come end of the week I'll be sending a little present your way. God bless.

Matt_Souren

06-13-2008, 08:28 AM

How is she doing since this thread was started? Will she grow out of any of those problems?

god bless..

fromxtor

06-17-2008, 06:54 AM

I'm sorry this update has been awhile coming, Natalie up till yesterday was doing pretty decent. Some of her teeth have been coming in and shes been a little fussy because of it. She now weighs 23 lbs and is 33" long, and has alot of hair.

BAD NEWS
Yesterday her blood oxygen monitor was reading kind of low for her, so we took her into the pediatrician. After a white blood cell count of 40000, they gave her a chest x-ray. Turns out her whole left lung is filled with fluid(pneumonia), and she is now only able to use her right one which was already damaged due to it collapsing shortly after birth. They wanted to admit her to the hospital right away, but with the possibility of her not pulling out of this we have decided to have her at home. She received a shot of antibiotics yesterday evening and we hope to hear good news at our 6:00 pm appointment today. Those who pray, please do so for Nicole, Natalie and myself. Thank you :bow:

Ninjabread

06-17-2008, 07:12 AM

Again Josh, my thoughts and prayers are with your family!

scottie

06-17-2008, 08:34 AM

I'll keep you all in my prayers as well. Please let us know what the progress is.

fromxtor

06-20-2008, 10:42 AM

New pics to make ppl smile:

http://i3.photobucket.com/albums/y81/fromxtor/100_1398.jpg
Natalie in her new bikini
http://i3.photobucket.com/albums/y81/fromxtor/100_1391.jpg
Hello Kitty sun glasses at Grandma/Grandpas pool in GA
http://i3.photobucket.com/albums/y81/fromxtor/000_0733.jpg
New bed
http://i3.photobucket.com/albums/y81/fromxtor/100_1402.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1405.jpg
Sleeping like a champ
http://i3.photobucket.com/albums/y81/fromxtor/100_1407.jpg
Daddy and baby time

Oh and btw the nasal cannula is in her mouth because, having in her nose too often makes it irritated and swollen blocking off any O2.

S13SilviaGirl

07-04-2008, 03:24 AM

Josh, she is beautiful, I hope she is doing well. Please, when you get a chance, throw up another update.

fromxtor

08-28-2008, 09:20 PM

I am happy to announce Natalie seems to finally be getting over her pneumonia, we haven't taken another chest x-ray yet, but she seems to be doing alot better.Also w/ her new diet she was lost quite a bit of weight, and has grown alot longer. Here are some newer pics.
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1414.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1416.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1420.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1419.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1448.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1449.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1469.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1470.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1506.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1518.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1546.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1569.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1588.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1579.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1580.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1581.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1582.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1584.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1585.jpg
http://i3.photobucket.com/albums/y81/fromxtor/Natalie/100_1586.jpg
Also one of our fine members here Shane (holemilk), is sponsoring a dyno day at his place of business coming up in September to benefit Natalie. Shane or myself will be giving more details as they come down from his workplace.

LA_phantom_240

08-28-2008, 09:27 PM

Good to see she is doing better. Tough little girl, that's for sure. Best of luck!

S13SilviaGirl

08-28-2008, 11:27 PM

Wow she is getting so big!!!! I am glad that she seems to be doing better! She is def. one tuff kid!!!

fromxtor

11-13-2008, 07:30 PM

I'm not home or else I would post new pics, Natalie is back on the hospital. We are planning on her going into surgery tomorrow to get a tracheostomy. Those who pray please think about her and my wife when you do so, I'll be fine.

pinky121388

11-15-2008, 06:50 PM

I will keep you guys in my prayers for sure...

fromxtor

11-18-2008, 06:43 AM

The surgery went well, and she is healing up nicely. I will post pics as soon as we get home, and I can upload them.

SochBAT

11-18-2008, 11:24 AM

My blessings are with you man.

My gf's mom had a child a few years back and she was diagnosed with Edwards Syndrome.

Edwards syndrome - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Edwards_syndrome)

In a nutshell, vital organs such as the heart, liver and often muscles don't develop properly, adding to a lower percent of survival.

She's still growing strong after 25 months.

Here she is posing for the camera. Funny thing is the glasses were from a build a bear her brother made for her. Sharing clothing with a bear = win!

http://s288.photobucket.com/albums/ll188/justleee/DSCN3770.jpg

I freaking love her.

mRclARK1

11-18-2008, 04:19 PM

90% of the adult males I know aren't as tough as this little girl.

Glad she's doing great. :)

fromxtor

02-01-2009, 02:18 PM

Here are pictures of Natalie starting w/ Halloween, pre/post op trach surgery,after she got home, and Christmas.

Halloween:
http://i3.photobucket.com/albums/y81/fromxtor/100_1721.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1726.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1724.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1723.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1722.jpg
She was a bunny, in case you can't tell

Pre-surgery BI PAP/Ventilator:
http://i3.photobucket.com/albums/y81/fromxtor/100_1749.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1750.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1751.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1752.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1753.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1754.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1755.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1756.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1757.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1757.jpg

Post tracheostomy surgery
http://i3.photobucket.com/albums/y81/fromxtor/100_1759.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1760.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1761.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1763.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1764.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1769.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1770.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1771.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1772.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1773.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1774.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1775.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1780.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1782.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1785.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1788.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1790.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1792.jpg

Ready to come home:
http://i3.photobucket.com/albums/y81/fromxtor/100_1794.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1795.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1796.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1797.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1798.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1799.jpg
^^Konked out

fromxtor

02-01-2009, 02:19 PM

Christmas:
http://i3.photobucket.com/albums/y81/fromxtor/image003.jpg
http://i3.photobucket.com/albums/y81/fromxtor/image004.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1811.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1827.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1828.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1829.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1830.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1831.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1832.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1833.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1834.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1835.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1836.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1837.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1817-1.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1818-1.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_1826.jpg
She also got the kitten pictured above...Molly.

Hanging out with her friend Jack(he pretty much has the same problems she does only he's five):
http://i3.photobucket.com/albums/y81/fromxtor/100_1807.jpg

While she was in the hospital we stayed in the Ronald McDonald house, in the room set aside for the man himself. This was on the wall staring at me everyday I woke up:
http://i3.photobucket.com/albums/y81/fromxtor/100_1789.jpg

fliprayzin240sx

02-01-2009, 05:20 PM

Damn Josh, good to hear she's doing better.

fromxtor

02-01-2009, 09:05 PM

^^ We are too, its too bad they wouldnt clear her to goto GA. Looks like I'm stuck in NC, with Phlip and Barry. :keke:

fliprayzin240sx

02-02-2009, 02:48 AM

Yah, i wouldnt take her to GA. Fuck that place during spring time. I've never had allergies till I got there, during tech school in Fort Gordon.

SochBAT

02-02-2009, 03:11 AM

She's looking pretty peppy in those shots.

No joke, House of McDee's are amazing. They help out so much, not too many people really realize that. I'm always spreading the word, but it doesn't really stuck until you've been there.

My prayers are with you guys.

fromxtor

02-02-2009, 06:48 AM

^^Thanks cheat, yea it beat paying $60-70 a night in a hotel for 3 weeks. Btw anyone reading this, if your in McDonalds please put something in the Ron McDon donation box. Anything will help, a penny, nickle, dime, anything.

93Vertman

02-02-2009, 02:47 PM

As we have seen in the history of man kind, we join together and wish the best for the ones that need it most and you sir are a father to a beautiful child. Another thing man kind has learned is that with time, technology and patience any body could get rid of a disability as we have the ability to make life happen at its best. I wish you the best of luck and you have my prayers.

TheS14project

02-02-2009, 08:27 PM

Im glad to hear that shes doing well, my thoughts and prayers will continue to be with her and your family.

DALAZ_68

02-03-2009, 09:19 AM

mo matter what crap goes down in this forum im always thinking and prayin for this kiddo... i hope u and ur wifey are stayin stron and positive no matter what, she's obviously stronger than any one else we know...;)

ericcastro

02-03-2009, 11:06 AM

She looks great.
Glad the surgery went well.
I remember reading this awhile ago and you being nervous about it.
I prayed for your family then and i will tonight.

BTW, is that tiger supposed to be a chair, cause its awsome!!! I need one in my size :) lol

fromxtor

02-03-2009, 12:26 PM

^^Yes it is a chair, although Natalie can't really sit in it.

fromxtor

06-05-2009, 11:17 AM

Pictures of Nat's Adaptive stroller (a nice word for wheelchair), btw this cost about as much as a 240 with and SR swap.

http://i3.photobucket.com/albums/y81/fromxtor/100_2119.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_2117.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_2118.jpg
http://i3.photobucket.com/albums/y81/fromxtor/100_2120.jpg

turbo_dreams

06-05-2009, 01:17 PM

So sorry to hear what happened man, Soon as i get my next check friday i'll help out as much as i can...How is she holding up so far?

fromxtor

06-05-2009, 07:04 PM

She's doing alot better man, got some bad news from the eye Dr. Said her optic nerve was paleing, said that a saign of loss of vision. But she looks at us when we talk to her, I dunno maybe he just doesnt know how to deal with a special kid.

Sileighty_DRFT89

06-05-2009, 07:47 PM

she is definitely one special strong girl. I read your thread awhile back and was actually thinking of it the other day. glad to see she's doing good. you guys are definitely in my prayers. God bless

DALAZ_68

06-05-2009, 08:43 PM

that chair looks better than my car...

fromxtor

06-05-2009, 11:11 PM

^^ for $5XXX it better be :D

Phlip

11-29-2017, 10:59 AM

Update:
OGs around here remember this as it happened. I have personally met with Josh, Nicole and Natalie a few times through the years at Carolina Nissans meets and the NC Zoo...
As much as I see people as screen names and forum members, Josh is also a good friend.
It pains me to update this thread with this information, and I am only doing so with his permission, but Josh posted on FB this morning that Natalie has passed away on the 12th.
I am asking for thoughts, prayers or whatever it is you believe in for him and his family as they deal with this.
Also, if you should happen to have it on your hearts, donations can be sent to PayPal at [email protected]